Here goes nothing:
Until I met Adam, my now fiancé, I had never heard of Cystic Fibrosis, the illness he was diagnosed with at birth. Six years later, it is perhaps the most impactful aspect of my day-to-day life. Cystic Fibrosis primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus. People with CF develop an abnormal amount of excessively thick and sticky mucus within the lungs, airways and the digestive system. The mucus causes impairment of the digestive functions of the pancreas and traps bacteria in the lungs resulting in recurrent infections which lead to irreversible damage. Lung failure is the major cause of death for someone with CF. There is currently no cure. From birth, a person with CF undergoes constant medical treatments and physiotherapy.
Adam goes through thousands of dollars of medication a month. He is currently on three different medications for his stomach alone (the second to counter the side effects of the first, and the third to counter the side effects of the second). He is almost always unwell. He is in and out of hospital far too often. His lung function is dropping. Consistently.
Life expectancy is 37.
Adam and I are getting married in November, and I would like to spend as many anniversaries with him as possible. On October 26th, I’m going to be running 8 kilometres in the Great Strides 2014 event to raise money for Cystic Fibrosis Victoria. The cost of living for people with CF can be crippling, and CFV have helped Adam and I time and time again. They are a fantastic not-for-profit organisation whose main goal is to improve the quality of life for families and adults living with Cystic Fibrosis.
Running 8 kilometres is going to be a massive feat for me, but it is not half so hard as the challenges many CF sufferers face on a daily basis. If you are able, I would appreciate absolutely anything you can donate. I know that I am asking a lot, and I understand that not everyone is in a position to do so—which is absolutely fine!—but this cause is too close to my heart for me not to explore every avenue. I need to do everything I can to help.
I would really appreciate it if you could reblog this post—if not for me, then for this adorable photo of my fiancé on his second birthday.
Donations can be made by clicking on this link [x]
Thank you so much for reading.